Resource Summary:

This suite of electronic resources built around Ed’s journal, chronicles Ed’s experiences as a carer following Mary’s diagnosis with Lewy body dementia.  

Students and experienced health professionals are rarely afforded an insight into how their words and actions are interpreted by, and impact, patients, families and friends.  Formal and informal carers also seek better understanding of dementia types, causative factors, symptoms, strategies to assist, services available, without necessarily having access to reliable resources.  

To meet the needs of such a diverse audience, Ed’s Story is freely available and accessible to any community member who seeks information about dementia care.  

A long goodbye (Ed's story) is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.

Credit for floral graphic design that appears on the home page and page banners goes to Jane Tarlinton of

To cite this resource: 
Baldwin, A., Anderson, S., Mathiesen, B., Johns, J., Lindsay, D., & Bodak, M. (2017). A long goodbye. Retrieved from

For all enquiries regarding this resource please contact: Dr Adele Baldwin: